Informal caregivers of stroke survivors with spasticity for. Caregiver burden was measured at 1 year using the relatives stress scale completed by 155 caregivers and the bakas caregiver outcomes scale 143 caregivers. Pdf validation of the revised bakas caregiving outcomes. Psychometrics of a new quality of life scale and variables associated with caregiving outcomes. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care. Validation of the revised bakas caregiving outcomes scale in.
The mcas is a modified version of the caregiver appraisal scale cas developed by mp lawton lawton mp, et al. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore. The original 10item bcos was improved by adding five items. Anxiety and depression associated with caregiver burden in. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Psychometric testing of the revised 15item bakas caregiving outcomes scale. Further research using the proposed conceptual model and the hfcql scale is warranted. The scale is designed for community living lay caregivers, not institutional care staff. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal.
The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. The responsibilities and challenges of caring for a loved one can place significant stress on the family caregiver. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care. Revised scale for caregiving selfefficacy steffen et al. Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general illhealth than noncaregiving individuals. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal living index across admission, discharge, and followup. Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare. Functional independence measure, bakas caregiving outcomes scale. The measure was modified by changing it from an interviewer to a selfadministered format, and by utilizing the original item set by dr lawtons group with individuals with tbi, with a resulting reduced item set being retained. Bcos is defined as bakas caregiving outcomes scale very rarely. Talk with your physician about ways that you can enhance balance in your roles. The scale is scored by calculating the mean of all items answered with a score range of 0 to 4. Validity and reliability of the zarit burden interview in. Caregiver burden considerably affects the lives of families providing care to people with advanced cancer.
Zarit burden interview and informal caregiver burden assessment questionnaire. Psychometric testing of the revised 15 item bakas caregiving outcomes scale. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care. What is the abbreviation for bakas caregiving outcomes scale. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. Short version of the burden scale for family caregivers. The participants were assessed at three different times by face to face or telephone interview. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters. Bakas t, champion v, perkins sm, farran cj, williams ls. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. Further reproduction prohibited without permission.
Preparedness is defined as perceived readiness for multiple domains of the. We prospectively studied patients admitted to our stroke unit over a 2year period 20012002. Indiana universitypurdue university indianapolis iupuithe number of patients with chronic heart failure hf is at an alltime high and the incidence is expected. This project is supported by the health resources and services administration hrsa of the u. Time and difficulty of tasks provided by family caregivers of stroke survivors. Nearly always please circle the response the best describes how you feel. It was also in anticipation of the 2005 national consensus. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. T1 development and psychometric testing of the bakas caregiving outcomes scale. Caregiver burden was assessed using the bakas caregiver outcomes scale. Responses are rated on a 5 point scale with scores ranging from 0 not at all prepared to 4 very well prepared. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective well. Palliative care and patient and caregiver outcomes jama. The participant flow diagram is provided in figure 2.
The impact of education on caregiver burden on two. The purpose of this study was to determine factors associated with hf caregiver depressive symptoms, life changes, and quality of life guided by a conceptual model derived from lazarus and colleagues transactional approach to stress. Caregivers are often unprepared and overwhelmed with the responsibilities of providing care to stroke survivors, which can lead to negative physical and psychological effects purpose. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers of stroke survivors. After each question, circle how often you feel that way. Mclennon sm, bakas t, jessup nm, habermann b, weaver mt. By adhering to the principles of pragmatic trials, this trial is designed to inform typical u. Assessing change in response to participation in the powerful tools for caregivers ptc program. The stroke survivors completed the barthel index and the geriatric depression scale. Two primary caregiver level outcome measures include the bakas caregiving outcomes scale bcos and depression phq9.
The present study examined the reliability and validity of the bsfcs. Telephone assessment and skillbuilding kit for stroke. Informal caregivers, older adults and transportation. Dont guess, assume, lead, or accept responses that do not. Measures included in this inventory are drawn from published sources. The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy, role functioning, physical functioning, and general health. Selected caregiver assessment measures family caregiver alliance. Community stroke rehabilitation teams csrts provide a communitybased, interdisciplinary approach to stroke rehabilitation. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of treatment. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. Our objective was to assess the effectiveness of these teams with respect to client outcomes. The impact of the carepartners program on caregiver burden was evaluated by the oberst caregiving burden scale ocbs and bakas caregiving outcomes scale bcos on two oncology units medicaloncology n 17 and blood marrow transplant n 21 at three times. The kingston caregiver stress scale kcss 2 abstract the kingston caregiver stress scale is a scale designed to allow a family caregiver to express the level of stress that he or she is currently feeling around the duties of dementia care.
Task difficulty and life changes among stroke family caregivers. Cis 2, csi 9, caregiver wellbeing scale 3 and zarit burden interview zbi 12. Development and psychometric testing of the bakas caregiving outcomes scale. The conceptual model was used to theoretically sketch out possible. Validation of the revised bakas caregiving outcomes scale in greek caregivers of patients with advanced cancer receiving palliative radiotherapy. Selecting suitable valid and reliable outcome measures to determine the impact of. A convenience sample of 202 stroke survivor caregiver pairs were recruited in the neurosurgery unit from march 2015 to march 2016. What is the first thing to do when scoring the bakas caregiving outcomes scale bcos. Subjective burden is a central variable describing the situation encountered by family caregivers. Logistic regression analyses were conducted with anxiety, depression, and the phq9 depression severity categories as a result of each caregiver burden scale. Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general ill. What score on the screening tool indicates a caregiver is experiencing high burden. Caregiver burden was measured by the oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos.
Background the burden experienced by family caregivers is the most important caregiver related. Bakas caregiving outcomes scale west indian medical journal. In fact, this stress can build up to actually cause caregiver distressa situation where the caregiver may become more susceptible to other health risks such as high blood pressure, diabetes, and increased risk of stroke. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. Selected caregiver assessment measures care alliance ireland. Stroke caregiver outcomes from the telephone assessment core. Bcos abbreviation stands for bakas caregiving outcomes scale. The 1st edition published in 2002, was the first publication of caregiver assessment tools aggregated for ease of use by researchers and program developers in the field. Caregiver hrqol was assessed using the sf12v2, which measures mental mcs and physical pcs components of hrqol. Bakas caregiving outcome scale shows evidence of satisfactory reliability and validity in. To evaluate the impact of the family informal caregiver stroke selfmanagement ficss program on burden and life changes resulting from providing care among family caregivers. Anxiety and depression were selfreported by the caregiver as a physician diagnosis. The original 10item bcos was improved by adding five items addressing. Depression severity was measured by the patient health questionnaire9 phq9.
Caregiving outcomes scale bcos across the three time points of. A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was founded in 1977 to focus attention on and develop. Burden scale for family caregivers in 20 european languages. Validation of the revised bakas caregiving outcomes scale in greek caregivers.
Ideas from aphasia caregiver and dementia caregiver groups page 5 of 6 reference list bakas, t. The most popular abbreviation for bakas caregiving outcomes scale is. Validation of the revised bakas caregiving outcomes scale in greek. Jan 12, 2018 caregiver fatigue is a fast track to caregiver burnout. Brazilian caregiver version of the apathy scale henrique cerqueira guimaraes1,2, patricia paes araujo fialho1, viviane amaral carvalho1, etelvina lucas dos santos1, paulo caramelli1,2 abstract no brazilian version of a specific scale for evaluating apathy in dementia is available. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. The tasks perceived as most timeconsuming and difficult, which also. Assessing the impact of caregiver outcomes on function and. Comprehensive data from the ida project were the basis of the.
Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra, culturally equivalent to the original version. Validation of the revised bakas caregiving outcomes scale. Welcome to the 2nd edition of selected caregiver assessment measures. Importance the use of palliative care programs and the number of trials assessing their effectiveness have increased objective to determine the association of palliative care with quality of life qol, symptom burden, survival, and other outcomes for people with lifelimiting illness and for their caregivers data sources medline, embase, cinahl, and cochrane. Pdf validation of the revised bakas caregiving outcomes scale in. Caregiver compares the individuals abilities today with how they were 10 years ago in 16 areas. To develop and psychometrically test the bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. Development and psychometric testing of the bakas caregiving. The higher the score the more prepared the caregiver feels for caregiving. Functional, psychosocial, and caregiver outcome data. Psychometric testing of the revised 15item bakas caregiving. Psychometric testing of the revised 15item bcos using a sample of 147 family caregivers of stroke survivors approximately 4 months after stroke was conducted to determine the quality of. West indian medical journal bakas caregiving outcomes scale. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome.
The patient health questionnaire depression scale phq9 measuring caregiver. Validation of bakas caregiving outcome scale for brazilian. Baseline 1 week prior to participation in ptc program, 1 week after completion of the ptc program, and 6months after completion of ptc program. An evaluation of the family informal caregiver stroke self. Future studies drawing on the experiences of larger samples of family caregivers are. Telehealth powerful tools for caregivers effectiveness. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes. Psychometric properties of a new hf caregiverspecific quality of life hfcql scale were also determined. The most popular abbreviation for bakas caregiving outcomes scale. Informant questionnaire on cognitive decline in the elderly iqcode.
Time and difficulty of tasks provided by family caregivers. Psychometric properties of carerreported outcome measures in. Hiring someone to come in at night will cost a little money, but it will be significantly less than moving your loved one into a longterm care facility. Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. Oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos assessed caregiver burden. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers.
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